April 2011 Archives

D+25 - OTC Meds time

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Basically the last few days I've been on Aleve, rarely popping a Demerol.  The Aleve lasts 9+ hours when you take it.  So this morning, I woke and really felt no pain, so I skipped the Aleve - by about 3pm I could feel some swelling though, so I took some.

Today's no-flash shot - oh yeah, I got a haircut.

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D+23 - Aleve-iating my discomfort

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So week 3 @ Tocchio and all seems well - my facial swelling seems to be decreasing, and the nerves in my lips and cheeks are asleep but giving hints they may be waking up.  This week he only gave me Demerol for pain, which was nice, in a way.   I have a few percs left but they probably won't be needed. He suggested Aleve (naproxen) for an OTC NSAID anti-inflammatory to work on pain and swelling left over.

So I've been talking a lot more this week.  Yesterday a LOT more, and I'm not sure if the exercise is helping, or hurting.  My upper lip feels like it grew from swelling while I was talking on the phone.  I don't like the feeling at all, but it may just be waking up.  So today was talk almost nothing day.  

The Aleve seems ok - it's 225mg a tablet, and supposed to  be 1 tablet every 12h - the pharmacist said the former dose was 500mg so if one tablet wasn't working, to take two.  I suggested this was off-label or something... but he was right, I went home and took one Aleve and the lip was still on fire - a second put it to sleep.   The Aleve doesn't REALLY last 12h it's more like 8 or 9.   But the extended half-life of the naproxen makes it GREAT as I can take them at 11pm or midnight and be pain free until 7 or 8 am the next morning.  Which means I can sleep though the night.   Huge win.

As to sleeping, yesterday I was sore sitting in my lawn-chair napping so I threw caution to the winds and lay on the couch.   With no pain.  I was hopeful, but I've been there before, so later that night I decided to test it again, and slept on the couch.  Still no pain, so I spent the night on the couch.  Slept okay.   So tonight, it's sleeping in my bed, with normal pillows and sheets and no sitting up and oh, God I hope this works.   I'm craving normal life.  I want my face to work and I'll take the minor pain and the mumbling if I can see some progress - the incremental improvements are smaller and smaller so they give me less of a lift over time.

Everyone says I look great but it's the inside that rules how I feel and it's still sore - I'm glad to feel like I can skip the narcotics and prescription drugs, but I want my nerves to work again.

Oh well, time to take my 2 Aleve and lie down and hope to sleep.  Going to a movie tomorrow so we can see what we can see...
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D+17 shots

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So last few days it's still been 'trying to sleep' - sitting all day makes yer ass sore and then sleeping sitting upright is sore too - the Zero-Gee reclining lawn chair has helped a lot actually.

5pm April 21st shots:
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Profile:
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Had a bit of a problem - took a percodan at noon and at 1pm I started to barf, and kept being sick for six hours.   That took the steam out of my sails, but good.   No idea why, I've had percodans since then to no ill effect.   Just bad luck I guess.

D+15 - Second Followup Checkup

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Went for my 2nd followup at Dr. Tocchio's today.  He said I'm doing great, and trimmed some of the stitch knots in my mouth that were protruding a lot.   We had a discussion of my status, my healing, etc, and if I was managing to eat better.   I told him I got the Slap Chop (as seen on TV) and he laughed.   

New pain meds:   since the NSAID (ketorolac) would eventually kill me if I keep taking it, and the codeine in the Tylenol-3s I had to complement them seems to affect me less and less each week, I have new white pain pills.

Demerol and Percocets.

Took a demerol around noon, and it wasn't really getting all the pain.  So at 2 I took a percocet and at 2:30 it kicked in and for the last hour I have been in no pain to mention and also, I am fucking stoned.

First time in 2 weeks, no pain bothering me at all.  Oh yeah.   Funny thing is I mentioned percocets to Dr. T, and he added them to my prescription when I mentioned I liked them from the time I had them for my wisdom teeth removal.

Ok, I'm gonna go lie down 15m while this buzz lasts. :D

Day+14 - Pain's back

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So yesterday I spent almost the entire day only on the NSAID and pseudoephedrine.   I didn't take a Tylenol-3 all day, until the evening to damp down some leftover pain.

I couldn't sleep at all after 2 am.   This morning around 7 am it got so bad I got up and took both painkillers and a PE tablet, and lay there for over an hour waiting for the pain to go away.  It didn't.

I'm sitting here now and I'm staring at the clock for the 90m before I can take another Tylenol-3 and the it's 3 hours for a ketorolac NSAID pill.    I'm debating taking some of the few mL of liquid codeine I have left over.

I guess this is my nerves waking up?  Or something?   Ow. :(
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D+13 Update

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Sleeping marginally better - tried sleeping upright in a chair last night at first, then moved to bed around 4 am, and at the end of the night actually managed flat on back with head up on pillow for a bit without much discomfort.   Really that will be huge when I can lie flat on my back, I'll be able to sleep properly a whole night.

Swelling seems to be mostly gone externally.   I can still feel the foci over my upper canines where most of the incisions were made and I guess most of the damage done.    Nose still clogs a lot but I've stopped waking up with dried blood flowing out of my nostrils. :)  Still feel like my left nostril is kinked inside or something and pinched so that it has much less room inside for air versus my right.  In the photo that's reversed - I think you can see my nose is not symmetric now though.  That's expected since they moved my jaw forward and, I think, sideways some.

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Obligatory bathroom shot, Day+13

And the profile:
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Ok - sleeping flat BAD D+11

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Sic transit gloria mundi.    Slept flat the last half of last night and woke up TOTALLY clogged nose.  Bagged my sinuses too - just spent the last hour+ using saline rinse trying to open my nostrils, then finally gave up and used Otrivin - I may take a Sudafed as well to get the pseudoephedrine in there, but Dr. T. said he thought I should stop.

This is now day two of 'don't talk, you idiot' and the facial swelling I feel over my cheekbones (the real last place I feel it) has dropped again.   And concomitant with that is a reduction in drooling!   So yeah for week two, my suggestion is don't talk, it just tires your face and makes swelling worse.

I'm going to call the doc and ask if I can take a Sudafed or if I should just suffer. :P

Other than the waking-up-with-hellishly-clogged-nose, I'm feeling good.   Ice cream is the most wonderful food in the world - eat two tubs of HaagenDaaz a day, GAIN WEIGHT.   The Maya Chocolate (with cinammon) is omg delicious.   I am also eating 'soft' food I don't have to chew - I got some macaroni and cheese from Brunos and sort of just smooshed it with my tongue and swallowed it unchewed;  I also chopped up a meatball sub into fragments and swallowed them.   I'm probably asking to somehow choke to death but it doesn't need chewing...

Update:  Talked to Sidney - no more Otrivin.  No more Sudafed allowed.   Went to SDM and got 60mg pseudoephedrine HCl tablets (with nothing else).   I can take these forever - except they'll give me insomnia.  Oops.  Oh well.

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Sleeping flat as of D+9

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I've had to sleep sitting upright since surgery - if I lean back the amount of saliva I am making started to choke me a little, and also the swelling was a problem - holding your head upright didn't stress the tissues, but lying back or leaning to one side did, causing pain.

Well, amazingly last night I tried lying flat, on my side, head on a pillow.  And no pain.   So as of D+9, I can sleep properly.   I did wake with a slightly soggy pillow, and my nose was more clogged than normal, but that's acceptable.


First post-op visit, new pills

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Day 8 and it's 'see the surgeon' time.  Took an x-ray of my head, took off the elastics, rinsed out my mouth, peered around in there, put elastics on both sides back on (not the front tho).

New pills:    Tylenol #3s and Ketorolac (an NSAID) for the swelling.

Freaking ketorolac sounds pretty chancy personally.

Oh, drove myself to doctor's, was ok.  First real trip out since coming home apart from being chauffeured around a couple times.

Got home, tired, clogged and sore.   Need to eat.
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Profile Comparison #1

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Traced the outline of my old profile in GIMP and rescaled on top of the new one.   So... did my jaw move forward at all?
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Yeah, just a little.   I figure my ear didn't move, and my forehead and eye and pupil line up.

Jesus look at my chin.  Or the lack of one I used to have.

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Side by Each, 1 Week

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Can you say 'puffy lower face', boys and girls?

It's been... one week...

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Since you broke my jaws.

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Apart from the bruise/hematoma whatever on my throat, I don't look so bad.   In the last day or so, I can now:
  • close my lips if I think about it
  • drink and swallow from small-mouthed containers decently
  • started drinking Boost-Plus (355 cals/cup)
  • added Advil to my pain meds rotation
    • 'Tylenol-3' - 6 mL codeine + one extra-strength Tylenol every 6h
    • One Advil (200mg) every 6h, staggered 3h

Codeine

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So it seems the 10mL codeine dose isn't lasting as long today as before.

This is not good.  Also, I'm getting more nausea from taking codeine now.

I just took the last 10mL from my first bottle of codeine.   I get to see the doc on Tuesday but I have a whole 2nd bottle of codeine ready.

Took an Advil tonight as well as my Tylenol.  Hopefully it'll help with swelling.

I did okay today - Alex came over with some chicken soup and ice cream, and I had a Boost, so I probably had 1000 calories or so, plus over 2 litres of fluids.

I'd like to thank everyone who's sent me good wishes for my recovery.  It has been  slow, it will be slow, and it's been tiring and somewhat lonely.  I want to get outside somewhere but today walking down half a flight of stairs made my ears start to ring.  I need to eat a LOT more and get energy back.

But keep sending me notes and questions, the other OSA sufferers who I've talked to or anyone else.   It's good to kill the endless hours of drooling and thinking 'ow'. :)


Half-dose Sunday

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First chicken consomme today, and that sodium is delicious.   Drank about 1.5 cups of it, plus half a cup of water.

Today I'm gonna aim for 8x8 in fluids.   That's 8 eight ounce glasses - each 8 oz. is 4 squirts of the 60mL syringe so I need 32 squirts a day.    My stomach gulps a lot of air along side the fluids though.  So you can only drink so much at once before you feel full as anything.  

Today I'm going to try half-doses of painkillers during the daytime and see how we get along.   I suppose I can just half-dose the codeine, the tylenol probably won't hurt me.

The cats are being a pain, one or both of them peed on some bedding on the floor and now I have to wash a duvet.   Poor guys are confused about what's wrong with me or something.   Maybe I'll board them for a week, it's $29 a day for both.  Get a week's uninterrupted sleep?   Sounds like a win to me right now.  Will think about it today.

Next up: calories - do I try a Boost-Plus today?   4 squirts to get 355 calories.  Wow.  So tempting.

And I now know there's no way I'm getting to see Rush on the 15th in Hamilton.    I need to get my ticket and pass it on to John G.

Edit:12:24 pm - hmm the half dose codeine/tylenol didn't really seem to do squat for the pain.   How odd.  Maybe 3/4 dose?

Things they don't emphasize

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  • You are going to drool.   A lot.   For days.   Get absorbent clothing.  Drape towels over yourself.  Whatever.
  • Don't hero up on drugs.  The codeine wears off pretty much in 4 hours.  Worry about being a junkie later.
  • Don't TALK.   From cutting my elastics early I regained speech (the doc removed my plastic internal brace, which mobilized my tongue).   Talking just tires you out and strains the damaged tissues.  SHUT UP.    Your mission is to let your face heal.   Once I could talk I babbled for hours and it tires the hell out of you.   And I'm sure I delayed healing.
  • The ability to sleep is a seriously delicate balancing act.   Literally.   When upright, the gravitational stress on my face is lowest - I don't feel like gravity is straining my face and I don't get pain.   But then my head lolls.   And as my painkillers wear off, my facial nerves wake up.    A couple nights ago, merely having a cloth pillowcase touching my right cheek caused a feeling of fire to spread across my face - ideally your head would stay straight, but inevitably it leans to one side - if I use a pillow to try to ever-so-gently prop my head vertical, the fire-in-the-face will start.   Basically I'm expecting this will drop off.  
  • Swelling goes away pretty fast on most of it - now I'm using ice strategically, not continuously.   First of all I'm worried about doing cold damage to my face.
  • My cats yowl at night, mostly Sam, and he's driving me nuts.   Earplugs will work on this one, unless the trigger face pain.   Ok, can't blame the surgery on this one.
  • Don't be overconfident.  I felt like a god this morning, and then walking 50m to John's car to drive to Shopper's Drug Mart gave me fucking chest pains.  Note: I do not have any heart problems, this was just walking kicking my ass.  Don't assume any particular issue will clear up at any rate.   Things WILL get better each day overall but even at D+6 you'll see ups and downs.
  • Sleep when you can - you have pain free windows of a couple hours at a time over and over all day.   Don't be bored and staring out the window wasting a perfectly good fresh dose of painkillers.   Nap. 
  • Drink more fucking water.   Yeah I know you know they tell you that.   It's serious.  You're gonna drool a lot of it away.  Pack your lips gently with saline-drenched gauze, it'll lower dehydration.
  • This shit hinted at above can go on for weeks and months.
  • Narcotics can make you say or do things you're not up to doing, or aren't clever or funny or cute.   Just try to be clearheaded about things.  Don't panic.   Your doctor has a 24h emergency line and will call you back and will indeed see you in emergencies.  
  • If you really can't get air via your nose (I had turbinate reduction) then cutting the elastics will let you breathe - just be aware you're gonna walk around like an extra in a zombie movie until the elastics are back on.   This will also lead to MAJOR dry mouth issues - the 14 hours between cutting my elastics and getting them replaced were panicky and may have included the worst night of my life staring at the clock.
  • The 24h home duty nurse will watch TV shows at 3 am like 'Deal or No Deal' in which the audience screams A LOT.   You may want to think about earplugs, if you're like me and figure you can't be arsed to get up and write her a note asking her to turn it down.

Calories

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So I weighed myself today, hey hey.   I was 195 pounds on Sunday.

Today, I rang in at 183.5.   

I think we can assume half or more was water, but the soreness of my jaw in swallowing has basically zeroed out my appetite.   It is *hard* to force oneself to eat when not hungry.  

Well, I lie, I'd go for a meatball sub (ok let's stop that idea NOW) but I'm only allowed clear fluids for another day or so.  Even milk-based Ensure-Plus drinks are bad, mmmkay, because they'll make phlegm.  And so I'm Not Allowed.

What is allowed:
- consomme (10 calories / 250 mL)
- fruit juices (130-150 calories/ 250 mL)
- Gatorade (100-130 calories/ 250 mL)
- Jell-o (320 calories/packet)

So the Eng Sci decides to try mixing a whole packet of Jell-o (cherry) with half a cup of water, and knocking that back.   And I slapped on (so to speak) an ice pack around my cheeks to reduce the swelling I've been causing by *talking* and yawning and stuff.   Also going to work on a litre of water.   Ice water turns out to be bad, too cold.   I also tried Ribena in lemonade, too acidic.   Dissolving confectioners sugar in iced tea or fruit juices will probably also help - yay for easily-dissolved sugar.

That and conserving energy loom large until I can get access to higher-energy-density drinks.   Maybe I'll try some SportsZone protein powder in water.    The nurse (who knows what she speaks of) says THAT is okay (whey based) even if milk-based stuff is not (which I question, but by now I should shut up and drink the stuff).

Updates as I manage to get to like 1 kcal today.   I'm guessing I'm around 200.   Jell-o will push me to 500.   My drool is brilliant cherry red.   Worship me.  I am the Avatar of Cherry.

Follow-up: No, We Won't Be Finishing The Jell-o.  Plus side, drank half a litre of water to lose the Intense Cherry Fleck Taste. SCIENCE! emot-science.gif
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Looked in the mirror a few min ago and poof, I've gone all yellow in the face and chest - it's like jaundiced blushing.

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A shirtless picture, for all the ladies.   Bruise spreading out from the throat, I guess, along the fascia?  Down to my sternum in front... ok no more shirtless ones.  

Oh I missed the faint blue/purple edge of the spreading front of the bruising.  Cool!

Saturday (Surgery+5d) Morning Pics

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Note:  I can smile again. :)

Saturday morning pictures,
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Side shot:
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Friday (Surgery+4d) Evening Photos

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Front and profile shots for Friday evening.
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Post Surgery Shot Day +2

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Jesus what a mess, I look like I have goiter.   I earlier thought this was on-day, but no, it's not because the pressure bandage over my chin is off, and they took that off Wednesday AM and I'm still in hospital in this shot.

Nurses!

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This really nice Persian nurse, who was the BEST at codeine injections, swear to God never felt the needle.

The nursing station in 4-South.   The nurse in front there was 'the sarcastic one' but I liked her. =)   There's a redheaded nurse hiding behind the desk who was also amazing, she listened to me when I said I had problems and helped a lot - though the taste of Otrivin is really vile, she would sit and squirt as much of it up my nose to clean me up as it took.  I hope I wasn't too much of a pain.

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Out of Surgery - In Hospital

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This is what I looked like at 3pm on April 4th - the swelling hasn't kicked in yet.

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Chin is a pressure bandage designed to hold swelling out, the blood in it is from my nose, you can sort of see where it ran down my face on the right side of the picture.  With the amount of anaesthetic they jab into your face on the day, I'm pretty pain-free in the photo, and I've been out of surgery about 2 hours.
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Apnea Suite

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A year or so ago (Feb 2010) I was diagnosed with severe Obstructive Sleep Apnea (OSA).  I was 42, I weighed 255 pounds (at 5'10" [optimistically]) and my BP was measured at 145/115.     I went for a polysomnograph, and was told that I had an average of 65 apnea events an hour during the night.  It was explained to me that the classification scheme they used was as follows:
  • Normal - 0-5 events/hr
  • Mild OSA - 5-15 events/hr
  • Moderate OSA - 15-30 events/hr
  • Severe OSA - 30+ events/hr
  • [Really Severe OSA - 60+ events/hr]
While faintly proud of my ability to stop breathing at night, this was just 'some number' to me until I looked into it more.   It also explained some health issues I'd had in the months prior, even though I never had the daytime drowsiness or lack of energy associated with severe apnea.

Once a week or so, I used to wake up with a headache.   This would come on at waking, and it persisted.  I had assumed that since it always sat in my right sinus area, it was some kind of sinus issue, and that looking at it suggested I'd benefit from using a humidifier, as the air in my apartment was usually bone dry.  Now this hadn't been an issue before (I've lived here since 1995) but I just put it down to 'getting older'.   The problem was it didn't really seem to make a whole lot of difference if I used the humidifier or not - or even if I ran a shower on 100% hot for an hour before bed.   I just seemed to have intractable sinus issues, and a headache that refused to respond (usually) to Tylenol or Advil at all.   Just one of those things.

Then on being told of my sleep apnea, I did some reading, and found out about 'waking headaches'.  Basically they fit the pattern.   Now maybe I had a cause - but what to do?

CPAP (the air mask thing) just didn't appeal to me - it's a pain to use, people hate it, etc and knowing my laziness, I knew I'd stop using it.   Even if OHIP paid for it.  The mandibular splint where they fit a custom mouth guard to your jaw to force it to slide forward also had a really poor reputation from what I could see about it.  What to do?

Obviously losing weight was #1 - apnea is clearly linked to obesity.   So I went on a crash weight loss program - I paid for a trainer at GoodLife (member since 1998! never went!!) and went on a 1500 calorie diet.   If a couple months I'd shed 30-40 pounds, and this continued until I dropped from my original 256 to 178 - the last 20 pounds were slow as hell, and the last 10 were insanely slow.   Given that even in the diet I chose (I frequently ate less than 1500 calories, sometimes under 1000) I managed to add some muscle, I figure I dropped 80 pounds or so.   Then I stuck with it because it was so hard to stop dieting.   I did eat more to get back up to 185 or so as 178 seemed gaunt to people.

In the meantime my family doctor, Tracey Cohen, but me on Norvasc for blood pressure, which reduced me to 120/80 when I was at 7.5 mg/day.    As the weight came off, I basically stopped taking the Norvasc and kept checking my BP at home, and at times when I was in the 180s in weight I'd  be around 110/75 at times.   So bye-bye Norvasc.

But what about the  headaches and the apnea?

Well, one major reason your airway closes is from sleeping on your back.   So I got a body pillow, and used it religiously.   No more sleeping on my back, I'd wedge myself around the pillow like my life depended on it. That thing ... worked.   With the diet, weight loss, Norvasc-BP control and the pillow, my headaches simply disappeared.   I honestly didn't have one for about a year.  Total, epic win. 

But that didn't address the long term issue of apnea - I'd ruled out CPAP for mostly aesthetic and compliance issues, so what else could I do?

To be continued...
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